|
|
DRAFT schedule |
|
|
|
|
Wednesday, November 2
|
|
|
12:00 noon |
Board and volunteer welcome and set-up in Learning/Media Room space. |
|
7 pm |
Dinner for F.E.A.S.T. Advisors, hosted by Board of Directors at Gadsby’s Tavern in Alexandria
$40 per person includes dinner, tax, and gratuity. Cash bar available. |
|
Thursday, November 3 |
|
|
7:00 am
|
Welcome breakfast
|
|
8:30 am
|
“It is Our Business: Our Place on the Map”
Laura Collins, F.E.A.S.T. Executive Director
(introduced by Olympia Collins)
|
|
9:00 am
|
“Rocky Terrain: Challenging Ideas About How Professionals Look at Families.”
James Lock MD PhD, Director of the Eating Disorders Program at Packard Children's Hospital at Stanford
(introduced by Sarah Krevans)
|
|
9:30am
|
Q&A with Dr. Lock
moderated by Becky Henry, Hope Network (F.E.A.S.T. Advisor)
|
|
10:00am
|
Snack/Mingling/Exhibits
|
|
11:00 am
|
Reading the Map: How parents know what is already mapped and what remains uncharted?
How to avoid pseudoscience and fight misinformation"
Cynthia M. Bulik, PhD, Director of UNC Eating Disorders Program
(introduced by Laura Collins)
Walter H. Kaye, M.D., Director of the University of California, San Diego Medical Center Eating Disorder Treatment and Research Program
(introduced by Mary Gutteridge) |
|
12 noon
|
Lunch |
|
1:15 p.m
|
“Getting OUT of Our Neighborhood: What do other parent advocates have to teach us about effective, authoritative activism?”
Ruth Sullivan, co-founder of the Autism Society of America, will speak to our advocates about the parallels and lessons from parents whose children have autism - a field where parents went from being "Refrigerator Mothers" to effective advocates.
(Introduced by Jennifer Whisman) |
|
2:15
|
What Can Parents Learn From Other Fields About Changing Attitudes and Policies?”
Panel Question and Answer session with Ruth Sullivan and Darcy Gruttadaro, J.D., (NAMI Child & Adolescent Action Center), moderated by Kitty Westin MA LP, Emily Program
|
|
3:15 pm
|
Snack/posters/Social time
|
|
4:00 pm
|
Put Yourself on the Map”: Activism, Campaigning, Lobbying” Introduction to Small Group Breakouts
Jeanine Cogan PhD and Kathleen McDonald, Eating Disorders Coalition
(introduced by Kitty Westin) |
|
4:15pm
|
Activism Training
Government/Policy change
(Jeanine Cogan, Kathleen MacDonald)
Traditional Media and Public Speaking
(Susan Ringwood, Kitty Westin, June Alexander)
Virtual Media
(Carrie Arnold)
Online Social Networking
(Mary Gutteridge) |
|
5:15 pm
|
Close for day
Learning Room Open until 6:00 pm
|
|
7:00 pm |
Optional dinner at Bilbo Baggins restaurant
Soda, coffee, decaffeinated, hot or iced tea
$30.00 including tax and tip
(CASH BAR)
Cash only – pay at FEAST registration table. |
|
Friday, November 4
|
|
|
7:00 am
|
Plated Breakfast
|
|
8:30 am
|
“Putting Parent Concerns and Assets on the Map: the law, healthcare policy, advocacy”
International Parent Panel: US (Colleen Wise), UK (TBD), Australia (Bridget Bonnin)
moderated by Susan Ringwood, CEO beat UK |
|
9:30 am
|
Break
|
|
10:00 am
|
Open Forum and small group discussion
Why can’t we all just get along?
● Do parents have a special role in identifying and challenging ideas in the professional world?
● How can parent activists get along with each other?
● How can parent activists work with professional and patient activists?
● Whose shoulders do we stand on? (learning from longtime parent activists)
● Where are the new parent activists going to come from? |
|
11:15 am |
Business Meetings:
● International Registry Project (Rebecka Peebles, chair)
● Medical Education Task Force – members and invited guests (M.B. Krohel, chair)
● Australian and UK Task Forces |
|
12:00 pm
|
Lunch
|
|
1:00 pm
|
KEYNOTE PRESENTATION
“Parents and Eating Disorders – Where We’ve Been and Where We’re Going”
Dr. Thomas R. Insel, Director of the US National Institute of Mental Health
(welcomed by Laura Collins)
|
|
2:00 pm
|
“What Directions Do Parents Want The Eating Disorder World To Go?”
Panel Q&A
Julie O'Toole MD, Moderator, Kartini Clinic (F.E.A.S.T. Advisor)
Panelists:
Dr. Thomas Insel (NIMH), Jeanine Cogan, PhD (EDC), Susan Ringwood (BEAT),
Steffi Bauer (Academy for Eating Disorders), Richard Kreipe (AAP) |
|
3:00 pm
|
Closing reflections
(Leslie Feder and Sarah Krevans)
|
|
3:15 pm
|
Snack break and raffle winner announcements |
|
4:15 pm
|
"The Destination: Full Recovery"
(not livestreamed)
Former patients will answer questions about family, parent support, sibling relationships - what helped, and what did not
Katie Cullinane - UK, June Alexander - Australia, Carrie Arnold - US, Olympia Collins - US
|
|
6:00 pm
|
Dinner Connections: Optional
meet in hotel lobby if you want to connect with others |
|
7:30 pm |
AFTER THE CONFERENCE
Documentary screenings
Parents are invited to view documentaries in production to give feedback
(sponsored by the filmmakers, not organized by F.E.A.S.T.) |
